Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.
For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.
Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.
The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.
Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.
Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.
“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.
Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.
Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.
But despite her suffering, she remains upbeat and happy and has even found love.
She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.
He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.
”He came and he showed me that I could live a true love story”, she says.
But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.
”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.
Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.
”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.
A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:
”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.
“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”
His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.
Karine wants others to realize the importance of being positive.
”Be happy, smile, because life happens only once,” she said.
In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.
Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.
Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.
Pop Icon Cyndi Lauper Battles Secret Illness: The Painful Truth Behind Her ‘True Colors
There’s something magical about Cyndi Lauper, the lively artist behind the 1983 hit “Girls Just Want to Have Fun,” a song that quickly became a global anthem, encouraging women everywhere to embrace fun and freedom.
Lauper is the definition of cool. Her quirky, carefree personality, playful fashion, and colorful hair inspire people with her message to always be yourself.
However, behind the playful voice that spreads joy to her listeners, Lauper battles a severe skin condition called psoriasis. At one point, it was so intense that, as she described, “It looked like someone threw boiling water on me.”
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The legendary pop star, now 69, recently opened up about her ongoing battle with psoriasis—a chronic skin condition that has no cure—since she was first diagnosed in 2010.
Psoriasis can cause severe pain, itching, discomfort, and rough, scaly patches on the skin. About 8 million people in the U.S. and 125 million globally live with this condition.
Lauper’s symptoms started as scalp irritation and general discomfort, which worsened over time.
Initially, she thought her itchy scalp was from frequently coloring her hair, but the symptoms continued, causing both physical pain and emotional strain for the award-winning musician.
The “Time after Time” singer is a busy mother, touring pop star, and activist.
Inspired by her sister Ellen, who is a lesbian, Lauper has become a strong supporter of LGBT rights, working tirelessly to advocate for the community.
Her 2005 song “Above the Clouds” was written in honor of Matthew Shepard, a 21-year-old gay student who was beaten to death in Wyoming. Lauper also started the “True Colors” concert tour in 2007-2008, which raises support for local and private LGBT charities and organizations.
Besides her advocacy, Lauper has an impressive career as a singer, songwriter, and actor. Over the past forty years, she has received many awards, including a Tony Award, two Grammy Awards, an MTV Music Video Award, and an Emmy Award for her role in a 1995 episode of the TV show *Mad About You*.
She also has a star on the Hollywood Walk of Fame, is a member of the Songwriters Hall of Fame, and in 2013, her humanitarian work earned her a special invitation to attend President Barack Obama’s second inauguration.
Despite her diagnosis, Lauper continues to stay strong. She is committed to not letting psoriasis hold her back and works on managing stress to avoid triggering flare-ups.
When she was first diagnosed and dealing with severe psoriasis, Lauper wrote the music and lyrics for the Broadway musical *Kinky Boots*, which won her a Tony Award for Best Original Score. She became the first woman to win a Tony in that category on her own. The show also won five more Tony Awards, including Best New Musical.
In a conversation with the American Academy of Dermatology (AAD), Lauper openly shared her experience living with the autoimmune skin condition, hoping her story might help others.
“I’ve never been able to really manage stress,” she admitted, explaining that she now takes a holistic approach to healing and stress relief both at home and on the road. She learned reiki, a Japanese technique for relaxation, saying, “That helps me.”
Along with reiki, Lauper works to stay grounded by meditating, practicing yoga, or taking walks in the fresh air with her dog and her husband, David Thornton, whom she married in 1991. The couple has one son, born in 1997.
“It’s not a bad thing to take care of yourself,” Lauper said, urging people to always “make a little time for you.”
She encourages starting small. “How about five minutes for you?” she added.
Lauper speaks with resilience about her experience, explaining that “when psoriasis gets really bad, it’s really hard to get up again.” She shared that at times, she couldn’t regulate her body temperature, leading to chills that could result in hypothermia. Even when resting, her condition only worsened, and hearing people dismiss it as “just a rash” added to her struggles.
“You don’t have to suffer,” Lauper said. Treatments, such as topical and oral medication or injections, can help ease the often unbearable symptoms of psoriasis. For Lauper, she found relief with Novartis’ Cosentyx, and as a spokesperson for the medication, she happily shares that she’s been “four years clear.”
In 2017, Lauper spoke with HealthDay about managing her psoriasis.
“It’s funny—you start wearing gloves, or this and that, hoping [psoriasis] is invisible, but it’s not. I didn’t show it off, like, ‘Woo-hoo, check this out!’ Doesn’t everyone try to hide it? You’d be surprised how many people have it and don’t talk about it. It’s one of those invisible things, so it’s good to talk about it.”
She shares more about it on her podcast *PsO in the Know*, where she talks with celebrities, advocates, and everyday people who offer insights on living with psoriasis.
The show is now in its third season and is available on Apple Podcasts, Spotify, Google Podcasts, Pandora, and Stitcher.
Lauper isn’t the only celebrity with psoriasis. Kim Kardashian, now 42, was diagnosed at 30 and is open about her challenges. Her mom, Kris Jenner, 67, had her first outbreak in her late 20s and said it was “life-changing.” Other celebrities with psoriasis include musician Art Garfunkel, 81, actor Jon Lovitz, 65, and Jerry Mathers, 74, known as “The Beaver.”
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