In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
I Asked to Be Cut from My Parents’ Will after Overhearing My Brothers’ Conversation
When Elena’s parents decided to leave her the family home, she expected her brothers to share in the joy. Instead, their hidden resentment leads to a revelation that changes everything. Will her decision to reject her inheritance heal old wounds or create new ones?
Growing up as the youngest and the only daughter in a tight-knit family had its perks and its challenges. But mostly, I felt cherished, surrounded by my parents and two protective older brothers, Kyle and Dean.
It was the kind of childhood you’d think was straight out of a feel-good movie—complete with raucous holiday gatherings, summer barbecues in our backyard, and the kind of parents who never missed a school play or a soccer game.
Last weekend was no different in its familial warmth, or so I thought as we gathered around the dining table, the familiar scents of mom’s cooking mingling with the soft murmur of catch-up conversations.
Our parents, though noticeably grayer and more deliberate in their movements, were as spirited as ever, their eyes twinkling with a kind of excitement you’d associate with kids planning a secret clubhouse meeting.
As we settled into the comfortable rhythm of passing dishes and sharing updates, Mom and Dad exchanged a glance—a silent nod that seemed to signal it was time for the ‘main event’ of the evening.
Clearing his throat, Dad announced, “We’ve been thinking a lot about the future, especially about this house, which has been a home to so many memories for us.”
Mom took over with a voice both soft and resolute, “We’ve decided that we want Elena to have the house in our will.”
The words landed on the table with a weight I hadn’t anticipated, stirring a mixture of surprise and gratitude in me. “Really?” was all I managed, my voice a mix of shock and a burgeoning sense of responsibility.
That’s when I noticed it—the poker faces on Kyle and Dean. As our parents continued discussing the details, my brothers clapped mechanically, their smiles not quite reaching their eyes.
Something in their expressions hinted at a private joke or a shared concern, hidden just beneath the surface of their orchestrated calm.
Trying to shake off a growing unease, I nodded and thanked my parents, though the look in my brothers’ eyes—hinting at something hidden—stayed with me.
After everyone had said their goodnights and the house quieted down, the small twinge of unease I felt earlier began to settle into the pit of my stomach.
Leave a Reply