Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
3-year-old boy dies in car crash on way to his own birthday party – rest in peace
A heartbreaking tragedy took place when a 3-year-old boy named Josiah Toleafoa was killed on the day he was supposed to celebrate his third birthday.
The sweet boy and his family were at the parking lot of Play City, an indoor venue for kids’ parties, when a car hit Josiah.
Witnesses of the tragedy said that his devastated mother screamed and cried hysterically as paramedics were trying to save his life. Unfortunately, Josiah didn’t make it. He died at the Rady Children’s Hospital.
This family’s lives turned upside down. What was supposed to be a day of joy turned into the worst experience of their lives. Their happiness was replaced with grief and sorrow and their world shattered into a million pieces.
Reportedly, the 36-year-old driver who killed Josiah and whose identity hasn’t been confirmed wasn’t under influence of drugs or alcohol. He stayed at the scene and cooperated with the authorities and reasons behind the loss of control haven’t been confirmed.
Members of the family started a GoFundMe to help Josiah’s mom and dad with the funeral expenses.
“JOSIAH brought the family together- his incredible SMILE, LOVING HEART simply brought JOY to any room. There was no time to see him do amazing things. I KNOW HE WOULD HAVE MADE A DIFFERENCE IN THE WORLD,” the boy’s aunt, Tatiana Toleafoa wrote.
“We’re doing this gofundme to help with my sweet nephew’s funeral expenses and services for the little angel that touched so many lives in so many different ways before he was called to Heaven. Any amount would help, anything at all. We are so thankful to have loving family and friends to be with us and love us through this horrible tragedy and want to be able to put him to rest to say goodbye and never forget the little boy who loved with a tremendous heart,” the page stated.
The owner of Play City donated $2,000 to the Josiah’s family and that the landlord matched his donation as well.
Currently, no arrests have been made.
We are so very sorry for this family’s heartbreak. There is no greater loss than that of losing a child.
Rest in peace, Josiah.
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