Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
My grandson kicked me out of his wedding because of my ‘dress’. Karma hit back 5 minutes later.
The day of my grandson Justin’s wedding was one I had been looking forward to for months. I had meticulously chosen a dress that was elegant yet flattering, showcasing the results of a lifetime dedication to fitness. As a 72-year-old who still actively participates in sports, I was proud of my figure and wanted to feel glamorous for this special occasion.
However, as soon as I arrived at the venue, Justin’s face twisted in disapproval. He approached me, his tone harsh and his words cutting deep. “Grandma, what are you wearing? This is embarrassing for our family. You need to go home and change.”
My heart sank. I couldn’t believe what I was hearing. Was it so wrong for me to want to look feminine and feel beautiful at my grandson’s wedding? I had no intention of leaving or changing my dress, but Justin’s attitude made it clear I wasn’t welcome unless I complied. With a heavy heart, I decided I wouldn’t stay where I wasn’t appreciated. I informed him that not only would I not be returning today, but if he ever invited me to another event, I would wear the same dress.
The Unraveling
Just as I was grabbing my jacket, ready to walk out and never look back, my son – Justin’s father – rushed over to me, his face pale with urgency. “Mom, wait! You won’t believe what just happened. Justin, he…”
The words hung in the air as he struggled to catch his breath. Curiosity and concern made me pause. What could possibly have happened in the few moments since Justin humiliated me?
A Sudden Twist
We hurried back towards the main hall, where a scene of chaos had unfolded. Guests were murmuring, eyes wide with shock, and the air was thick with tension. As we pushed through the crowd, I saw Justin at the center of it all, looking pale and distressed.
It turned out that just moments after our confrontation, Justin’s bride, Emma, had called off the wedding. She had overheard his harsh words to me and decided that if he could treat his own grandmother with such disrespect, he wasn’t the man she wanted to marry. Emma’s decision sent shockwaves through the gathering, leaving Justin to face the immediate consequences of his actions.
The Lesson
Standing there amidst the stunned crowd, I felt a mix of emotions. Justin’s embarrassment was palpable, but there was also a sense of justice in the air. His behavior had consequences, and Emma’s bold decision had highlighted the importance of respect and kindness, values that should never be compromised.
Justin’s wedding day didn’t end as planned, this shook my grandson well. But perhaps it was a necessary wake-up call. As for me, I walked away with my head held high, confident in the knowledge that staying true to oneself and standing up for one’s dignity is always the right choice.
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