Mom of Boy with Rare Condition Shares Their Life, People React Differently

Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.

At first, everything seemed normal.

Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.

For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.

Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.

Then the news of the diagnosis hit the parents, something no one could have anticipated.

As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.

Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.

Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.

In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.

His mother uses social media to spread awareness about his condition.

At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.

Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.

Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.

Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.

As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”

People in comments react differently.

Mostly people express support and empathy.

But some show a bit of skepticism.

  • Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
  • I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram

Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.

Chris Hemsworth’s Wife Slammed for Wearing ‘Pajamas’ to Star-Studded Event!

When Chris Hemsworth, the Australian heartthrob known for playing Thor, received his star on the Hollywood Walk of Fame, his wife Elsa Pataky was in the spotlight for the wrong reasons.

Before *Friends*, Courteney’s career was already taking off. She was featured in a famous music video years earlier.

So, how did Courteney feel about playing Monica? And what is she up to these days? Here’s everything you need to know about her.

Courteney Cox Reveals Heartfelt Pain Over Not Getting an Emmy Nomination for Friends!

Courteney Cox became a global superstar overnight when she landed the role of Monica Geller on *Friends*. Her life changed completely—she became very famous and very wealthy.

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Before *Friends*, Courteney’s career was already taking off. She was featured in a famous music video years earlier.

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So, how did Courteney feel about playing Monica? And what is she up to these days? Here’s everything you need to know about her.

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Getting a big break in acting must be thrilling, knowing you’re on your way to something great. For some actors, this happens when they’re young, while others work hard for years before getting their chance in their 30s or 40s.

Once that big break comes, things usually start to take off. For Courteney Cox, that was definitely the case.

The Alabama native first appeared in Bruce Springsteen’s music video for “Dancing in the Dark,” which kicked off her Hollywood career. Soon after, she landed the role of Monica Geller on the hit show *Friends*, and her life changed forever.

These days, Courteney Cox is busy with various projects, has built a wonderful family, and welcomed her children.

She has also been open about plastic surgery and facelifts, and has recently changed her views on the topic.

Here’s everything you need to know about Courteney “Monica Geller” Cox!

Instagram/CourteneyCox

Courteney Cox was born on June 15, 1964, in Birmingham, Alabama, as the youngest of four children to Courteney and Richard Lewis Cox. When she was young, she was teased at school because of her last name.

She said, “I hated my last name, but when my dad passed away, I decided to embrace it and keep it going since there was no one else in the family to do so.”

When Courteney was 10, her parents divorced. She lived with her mother and later her stepfather, and the divorce had a lasting impact on her. She mentioned that one of her earliest memories is of her parents’ divorce. She said, “My mum wasn’t a go-getter, so I’m grateful I could see that and become the opposite.”

Courteney didn’t always dream of acting. She initially wanted to be an architect and studied architecture at Mount Vernon College. However, she dropped out and moved to New York City, where she started modeling and worked at a music agency.

Her modeling career was short-lived, but she soon transitioned into acting. In 1985, at age 21, Courteney got her big break, not in a film but in a music video. Director Brian De Palma cast her in Bruce Springsteen’s video for the hit song “Dancing in the Dark.” The video was filmed during a Springsteen concert, and Courteney played an enthusiastic fan in the front row.

Youtube/BruceSpringsteen

At the end of Bruce Springsteen’s “Dancing in the Dark” music video, Springsteen brought Courteney Cox up on stage. They danced together to a saxophone solo by Clarence Clemons.

Looking back, Courteney wasn’t thrilled with her dancing in the video. She said, “That wasn’t good dancing on my part. I’d only recreate it as a joke.”

The video was a big hit on MTV, and even though Courteney was only in it for about 20 seconds, it helped her career take off. That same year, she appeared in the film *Misfits of Science*, and two years later, she landed her first major role.

She starred in the popular sitcom *Family Ties* and had smaller roles in films like *Ace Ventura: Pet Detective* with Jim Carrey.

But in 1995, something unexpected happened. Marta Kauffman and David Crane created a new show about six friends living in New York. Courteney Cox was cast as Monica Geller, and it changed her career forever.

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In 1993, Kauffman and Crane started working on a new show. It premiered on September 22, and right from the start, it was clear it was going to be a hit.

Today, *Friends* is one of the most famous sitcoms ever, running for 10 seasons and 236 episodes. The final episode was watched by over 50 million people in the U.S. Courteney Cox, along with Jennifer Aniston, Lisa Kudrow, Matt LeBlanc, Matthew Perry, and David Schwimmer, became a global star.

Marta Kauffman said in 1995, “She’s adorable and smart and really together. She is Monica.”

Courteney Cox said, “I love Monica because she’s a grown-up, and I can bring more of my personality to her. She’s goofy, angry, sarcastic, and a bit naughty. People might see her as the goody-goody, but I think she has more sex appeal than the others.”

Courteney found a lot of herself in Monica. In real life, she’s also what she calls a “neat freak,” just like her character on *Friends*.

Instagram/CourteneyCox

Courteney Cox shared that she doesn’t use a lint brush or iron her clothes, but she’s great at picking lint off others. She once noticed she was acting just like Monica while helping John Stewart on his show and thought, “I’m just like Monica. This is kind of scary.”

*Friends* became a huge hit worldwide, and the cast earned a lot of money. In the final seasons, they each made $1 million per episode. Even now, 17 years after the show ended, they make about $20 million a year from reruns because they get a share of the show’s syndication revenue. Netflix paid up to $100 million to keep *Friends* on their platform through 2019.

Today, Courteney Cox has a net worth of about $150 million.

Despite the success and money, Courteney was hurt that she never got an Emmy nomination while all her co-stars did. “It always hurt my feelings,” she told Howard Stern. “When every single cast member was nominated but me, it definitely hurt. I was happy for everyone, but it was tough being the only one left out.”

David M. Benett/Dave Benett/Getty Images

Courteney Cox said she always wanted her fellow cast members to win awards, but she also wanted to be included sometimes. She never wanted to take anything away from anyone else, just to be part of it.

Even though she didn’t get an Emmy for *Friends*, she did receive awards for her work on other projects. After *Friends*, Courteney starred in the sitcom *Cougar Town* as Jules Cobb, and she was recognized for her role there. In 2010, she got a Golden Globe nomination for Best Actress in a Comedy or Musical Series.

Over the years, Courteney Cox became a global star, as well as a wife and mother. She married actor David Arquette in 1999, and they had a daughter, Coco, in 2004. They divorced in 2013.

Since then, Courteney has been in a relationship with musician Johnny McDaid from the band Snow Patrol.

There have been rumors about Courteney getting plastic surgery and Botox. In 2017, she confirmed that she had used fillers but also mentioned that the world of cosmetic procedures can be quite intense.

Gregg DeGuire/WireImage

Courteney Cox talked about how easy it is to get caught up in cosmetic procedures. She said that doctors often suggest small tweaks that seem harmless at first. Over time, these changes can add up, and you might not notice until it looks different in photos or someone points it out.

Eventually, Courteney decided to stop using fillers and embrace her natural self. She now promotes being yourself and often shares makeup-free photos on Instagram, which can inspire others to do the same.

“I’m as natural as I can be. I feel better because I look like myself. I think that I now look more like the person that I was, I hope I do,” Cox said.

“Things are going to change. Everything’s going to drop. I was trying to make it not drop, but that made me look fake. You need movement in your face, especially if you have thin skin like I do. Those aren’t wrinkles—they’re smile lines. I’ve had to learn to embrace movement and realize that fillers are not my friend. “

In 2022, Courteney Cox used an app to see how she might look ten years older, and many of her followers were surprised by the results. She mentioned in the caption that she probably wouldn’t style her hair that way.

Courteney has also been open about her experience with cosmetic procedures. In 2019, she admitted to using lip fillers because she wasn’t happy with her appearance. However, she stopped using them when she realized she didn’t look like herself.

Instagram/CourteneyCox

Courteney Cox now feels great about herself. She says she embraces getting older and is happy with how she looks naturally, without trying to change it. She’s focused on growing and improving in other areas of her life.

Courteney Cox was fantastic as Monica Geller on Friends, and people still love watching the show today.

What do you think about Courteney Cox’s views on fillers and cosmetic procedures? Let us know in the comments! And don’t forget to share this article on Facebook with your friends and family!

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